5 Rick Violand, PT, LLC, Ellicott City, MD, United States. To increase cell size for statistical analyses, the Epigenetics, Metabolism and Sickle Cell clinics were combined to the category of Other, and American Indian/Alaska Native, Native Hawaiian, Other, Other Pacific Islander, and Hispanic races and ethnicities were also grouped together. The Center of Disease Control determined that patients with neurological conditions are high-risk and more susceptible to severe complications, when infected with COVID-19 (4). We aimed to systematically provide essential COVID-19 pandemic related information to clinicians before their visits with the family, and improve providers ability to deliver high quality care (8). Six of 7 program directors responded to a survey assessing their experience utilizing the Pandemic Intake survey (Table4). Responses on the Pandemic intake questionnaire were dichotomized; for example Do you consider the patient to be at increased risk for COVID-19 related complications?, yes and unsure responses were coded as an affirmative response and no was coded as a negative response. They face significant disruptions to home and school routines, that can cause further declines in health outcomes, and limitations in accessing necessary healthcare and educational services (2, 3), which can further exacerbate their neurodevelopmental impairments. Families with infrequent access to email and non-English speaking families may have been less likely to participate. Call the Coronavirus Hotline on 1800 675 398 if you need help to report a rapid antigen test (RAT) or if you have any questions about COVID-19. Hancock issued the original stay-at-home order for Denver a little after 2 p.m. Monday. The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. For patients at the Kennedy Krieger Institute, clinical care requires access to physical, occupational and speech therapy. More information can be found via the links below: Patients who have recovered from the COVID-19 virus are more likely to have long-term physical, cognitive and emotional effects that linger after recovery. This was a cross-sectional study; further work is needed to understand implementation over time during the pandemic. The scale had low internal item inter-correlation, i.e., less than 0.70 (Cronbach's alpha =0.491), suggesting that the questionnaire items were sampling from a variety of clinical areas rather than assessing a single, unitary clinical domain (8, 9). Children who have recovered are no exception. Clinic type was a significant predictor; age, sex, and race were not. Asbury K, Fox L, Deniz E, Code A, Toseeb U. One of those clinics is located in Maryland at the Kennedy Krieger Institute in east Baltimore. Patients from CARD had higher reports of worsening behavior. Manyindividualswith intellectual and developmental disabilitieshaveunderlying medical conditions that put themat a higher risk for developing COVID-19 and even severe complications. The mean age was 9.5 years (range 021.6 years); 1,119 (68.1%) were males and 524 (31.9%) were female. Press Release / March 17, 2020. The implementation the Pandemic Intake survey facilitated the exchange of information and ideas, to benefit both patients and providers, and can be adapted to be used as a model for future pandemics at similar institutions. All authors contributed to the article and approved the submitted version. The Institute's Health Information Management department received the completed questionnaires through automated emails from Qualtrics, and uploaded them to the EPIC health management system. Providers also worked to make more in-person (50%) and virtual therapies available (50%), and provided clinical equipment for patients without access (50%) (Figure2). In partnership with the Maryland State Department of Education andlocalschoolsystems, Kennedy Krieger School Programs serve nearly 500 public school students with disabilities from more than half of the school districts in Maryland. All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Analyzing 2,589 child neurology telehealth encounters necessitated by the COVID-19 pandemic. But many don't about it, and that's why Kennedy Krieger is now trying to get the word out about it in schools. Pandemic Intake questionnaire response data were de-identified, linked with Contact Serial Number, and merged with corresponding demographic information from the healthcare record system of EPIC. 1800 020 080. No use, distribution or reproduction is permitted which does not comply with these terms. J Pers Med. Please send an email to KYcovid19@ky.gov The impact of telehealth implementation on underserved populations and no-show rates by medical specialty during the COVID-19 pandemic, Evolving healthcare delivery in neurology during the coronavirus disease 2019 (COVID-19) pandemic, What is coefficient alpha? COVID-19 vaccinations; Find out about other NHS services on NHS.UK. Prvu Bettger J, Resnik LJ. Disruptions in their home and school routines, and restrictions accessing crucial healthcare services has had a significant impact. Downvote. BALTIMORE Johns Hopkins Medicine and the Kennedy Krieger Institute have partnered together to host a drive-thru COVID-19 vaccination clinic. Guardians of Black and African American (17%) and Asian (13%) children were 0.6670.486 times less likely to report worsening in behavior, compared to parents of White children (23%). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. We hypothesized that clinicians providing medical care during the pandemic would be assisted by this information. For patients seen in multiple clinics or multiple times, the first survey answers were analyzed. Finally, 4% (n=66) of guardians indicated difficulty accessing surgical services during the pandemic. Analyzing 2,589 child neurology telehealth encounters necessitated by the COVID-19 pandemic. Kennedy Krieger Institute selected this as a representative review. Murphy A, Pinkerton LM, Bruckner E, Risser HJ. J Appl Psychol. Festivals and Other Multi-Day Large Gatherings: COVID-19 Planning Toolkit for Health Departments. The complex, inter-related factors, unique to patients with neurodevelopmental disorders influence the impact of the COVID-19 pandemic. Under the federal Families First Coronavirus Response Act (FFCRA), the Paycheck Protection Program and Health Care Enhancement Act (PPPHCEA), and the Coronavirus Aid, Relief, and . doi: 10.1016/j.jad.2020.08.001, 17. The National MS Society is a collective of passionate individuals who want to do something about MS now to move together toward a world free of multiple sclerosis. Mucalo L, Brandow AM, Dasgupta M, Mason SF, Simpson PM, Singh A, et al. 0381-2315879. For the patients, families, students and staff of Kennedy Krieger Institute. Clinicians initiated the use of a questionnaire to ask guardians about COVID-19 related concerns prior to clinical visits. Clinic type was a significant predictor, but sex, age, and race were not (80.5% correctly classified, 2 (14, N=1,638)=158.6, p<0.001). Any product that may be evaluated in this article, or claim that may be made by its manufacturer, is not guaranteed or endorsed by the publisher. J Autism Dev Disord. MDH COVID-19 Public Hotline. Sze S, Pan D, Nevill CR, Gray LJ, Martin CA, Nazareth J, et al. Finally, 4% (n=66) of guardians indicated difficulty accessing surgical services during the pandemic. This de-identified database was stored on a secure Institute shared drive, and analyzed within IBM SPSS 27. An examination of theory and applications. Six of 7 program directors responded to a survey assessing their experience utilizing the Pandemic Intake survey (Table4). Meetings should be conducted virtually whenever possible, especially during times of increased transmission. Regarding sleep, 11.7% (n=191) indicated the child's sleep worsened during the pandemic (Table3). The clinics noted as medically more complicated include: Neurogenetics, Neurology, Spinal Cord Injury, Sturge-Weber syndrome, Epigenetics, Metabolism and the Sickle Cell clinic. This poses an issue for patients struggling to access telehealth services (6), specifically patients from underserved populations (7). doi: 10.1136/bmjopen-2020-045343, 3. A Pandemic Intake questionnaire regarding COVID-19 related medical concerns of guardians of patients was distributed using Qualtrics. And doctors at the clinic have seen more cases of "long COVID" as many have started going back to school. Black and African American patients (8%) were 1.9 times more likely to report worsened appetite than White respondents (4%). (2020) 95(9):e1257e66. October 12, 2021 / 11:03 PM To make a referral or request an appointment, contact Patient Access at 443-923 . Responses were analyzed in relation to sex, age, race/ethnicity and clinic. Rametta SC, Fridinger SE, Gonzalez AK, Xian J, Galer PD, Kaufman M, et al. This website uses cookies to improve your experience while you navigate through the website. The data collected suggests that patients from medically complicated clinics were more reliant on therapies and were more affected by the inability to access it. National coronavirus helpline. Twenty percent (n=327) of guardians reported worsening in their child's behavior during COVID-19 (model correctly classified 79.9% of the sample, 2 (14, N=1,637)=36.8, p=0.001). A case-control study: results from two observational cohorts. The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. Add an answer. It is designed for people with disabilities who are 12 years of age and older, as well as their families and caregivers. Click herefor more information about inpatient hospital admissions. Questions asked guardians to identify a worsening, improvement, or no change in quality of life due to the COVID-19 pandemic. . View more interviews in the video archive. Department of Labor. This project received acknowledgement from the Johns Hopkins Institutional Review Board. To bridge this gap, several programs moved to telehealth. During the pandemic, results identified several major areas of impact, including patient populations at increased risk for behavioral changes, sleep and/or disruptions of medical care. Most people can manage COVID-19 at home with support from their GP. The COVID-19 Hotline (800) 722-5725 can answer general COVID-19 and vaccine questions. Please do not call the 0300 number below as we are unable to help you. Children's Mercy Kansas City, United States. Chen PM, Hemmen TM. Avoid close contact with people who are sick. Frequently Asked Questions. The studies involving human participants were reviewed and approved by Johns Hopkins Institutional Review Board. By: Daily Record Staff No formal analysis to attempt to demonstrate these differences was done. Questions used a three point Likert-like scale and guardians indicated if they agreed with the item statement (yes), were not sure (unsure), or disagreed with the statement (no). Those who need intensive therapy and rehabilitation may be recommended for inpatient admission to Kennedy Krieger. Table 4. Twenty percent of guardians of CDL patients reported a worsening of behavior, while guardians of CARD patients (33%) were 2.05 times more likely to report worsening behavior, and respondents from the Spinal Cord clinic (3%) were 0.12 times less likely to report worsening behavior. Rehabilit. Program directors made more appointments available and provided COVID-19 education to their patients. A Kennedy who worked on Jared Kushner's COVID-19 task force said he was asked to distort a coronavirus prediction to make the outbreak seem less bad. These cookies will be stored in your browser only with your consent. Guardians of patients seen at the SWS center (9%) were 2.4 times more likely to report worsened appetite then CDL patients (5%). Providers increased availability of in-person and virtual therapies and visits and made referrals for additional care to address this. COVID-19 Hotline (800) 722-5725. The statistical model correctly classified 88.3% of the sample, 2 (14, N=1644)=24.8, p=0.037). The 111 callback service might be busy. But opting out of some of these cookies may have an effect on your browsing experience. (2020) 95(2):7784. Comorbidities are risk factors for hospitalization and serious COVID-19 illness in children and adults with sickle cell disease, Risk factors for COVID-19 mortality among privately insured patients.

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